|
G Tube Bolas feedings
|
| (Wednesday, 08 July 2009) Written by yolanda gary |
| Aidan was born with vacterl association. He is now 5months old. Hes got TEF,hand and arm anomalies,scoliosis,horseshoe kidney,missing ribs,hemi vertebrea. He has had surgery for TEF, fundoplication,hiatal hernia,GTube, and 2 esophageal dialations. He is a tought little guy, beautiful. Hes been tru s... (354 more chars) |
|
Hi all
|
| (Wednesday, 10 June 2009) Written by sian watkins |
| Hey everyone ,
I have just found this site and I am so glad I have joined . My name is Sian , I am 26 and I have 4 children and a lovely partner. We have just had a baby girl called Summer who was born with symbrachydactlyly of her left hand which means she was born with no digits on ... (2757 more chars) |
|
Billie-Jo
|
| (Sunday, 26 April 2009) Written by Myrtle Woods |
| My little granddaughter was born on 11th August 2008 weighing just 770g or 1lb 11ozs and we were told that she wouldnt survive the first 24 hours. She did and had surgery on her 2bd day. She was diagnosed almost immediately at birth that she was a vacterl baby. We had known of some of the comp... (1035 more chars) |
|
Information regarding Radial club hand
|
| (Friday, 13 February 2009) Written by John Wood |
|
Information taken from
The childrens hospital boston website:
http://www.childrenshospital.org/az/Site1070/mainpageS1070P0.html
What is radial club hand?
The normal... (14428 more chars) |
|
My life and times...
|
| (Wednesday, 28 January 2009) Written by John Wood |
| Hi everyone,
I would like to give you a brief history of my life and career so far...
I was born in 1971 in Wakefield, West Yorkshire, England, I was born with radial aplasia.
(no Radius bones). I have radial club hands and only 2.5cm thumbs on both hands.
It was said to be a very rare... (3079 more chars) |
|
severe vertebrale abnormalaties
|
| (Wednesday, 16 July 2008) Written by |
| Hi To all:
My daughter is 15 and has been told from birth that she has VATER Syndrome!We have gone through several surgeries to correct kidney and anus problems! As well her heart is not in a normal position as well as her kidneys! Her issues with her kidneys and bowels are under control and for... (1040 more chars) |
|
Aleds early days
|
| (Monday, 28 January 2008) Written by Neale |
|
When Gaile was pregnant with Aled we had no idea that he was to have loads of problems. Gaile had gestational diabetes which meant that the hospital was carrying out extra ultrasound scans to make sure that things were okay.
Aled was born on a Monday by caesarean section weighing 2.162 K... (7043 more chars) |
|
Josephs Story
|
| (Sunday, 06 January 2008) Written by Paul Smith |
| The first time we know something was wrong, was at the 20 week scan, this started a very emotional time for us not knowing what was going on or why he had problems.
We where told our son had kidney problems, this was because they could only see one kidney that seemed to stretch from one side... (3967 more chars) |
Users Blogs